tag:blogger.com,1999:blog-5445812383851572581.post7637705771843750891..comments2023-10-28T08:05:25.184-04:00Comments on AUTISM DADDY : Why I'm Not Going To Move Across The Country To Help My Kid w/ AutismAutism-Daddyhttp://www.blogger.com/profile/01849264034102026919noreply@blogger.comBlogger84125tag:blogger.com,1999:blog-5445812383851572581.post-67151297265139781392016-08-01T21:13:48.882-04:002016-08-01T21:13:48.882-04:00I hear you but if you ever were to decide to send ...I hear you but if you ever were to decide to send your son to residential while he was still school age or when he is an adult and you send him to a group home I wouldn't keep him in NY that's for sure! Not a great state for either of these situations.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5445812383851572581.post-30996665758436006642016-01-06T17:39:27.548-05:002016-01-06T17:39:27.548-05:00Here! Here! Everyone's situation is different....Here! Here! Everyone's situation is different. You have so much more available to you for Kyle where you are than we have here in small town Mussissippi. No way would I leave a place where my child is happy and had a huge familial support group like that! prinni2https://www.blogger.com/profile/09807878385365560102noreply@blogger.comtag:blogger.com,1999:blog-5445812383851572581.post-75562316304576553242015-01-08T23:39:47.328-05:002015-01-08T23:39:47.328-05:00I can definetly relate to you, as my support syste...I can definetly relate to you, as my support system consists of two people and it's not the "I would do anything we can to help" kind of support system. However, it is better than not having any at all, so I will stay put as well. It would be nice to have a date night though, as it has been 7 years since we've had one, and our marriage could definitely use some time for ourselves.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5445812383851572581.post-75664660272366742032014-08-26T14:56:09.756-04:002014-08-26T14:56:09.756-04:00Great post AD, I loved it!!! ;)Great post AD, I loved it!!! ;)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5445812383851572581.post-10769061289283891492014-08-26T14:13:31.178-04:002014-08-26T14:13:31.178-04:00I couldn't agree more. I'm tired of peopl...I couldn't agree more. I'm tired of people saying change schools, change districts, move here, move there. I wish it was that easy, it's not. Carriehttps://www.blogger.com/profile/14638186302738487977noreply@blogger.comtag:blogger.com,1999:blog-5445812383851572581.post-80714909032584157162014-08-26T13:46:28.431-04:002014-08-26T13:46:28.431-04:00I am in complete agree ment with you if it doesn&#...I am in complete agree ment with you if it doesn't work for the family it cant be donAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5445812383851572581.post-74411943680719598602014-08-26T13:43:05.429-04:002014-08-26T13:43:05.429-04:00The support system is supreme. We do have family ...The support system is supreme. We do have family local, but no one seems willing to baby sit or help. We are fortunate that the youngest's daycare has a parents night out once a month. You are making the best decision for your family!Anonymoushttps://www.blogger.com/profile/11885419327985244443noreply@blogger.comtag:blogger.com,1999:blog-5445812383851572581.post-62158930758532775572014-08-26T13:15:18.434-04:002014-08-26T13:15:18.434-04:00You are more that just a grandma. You are a pilla...You are more that just a grandma. You are a pillar of support for your daughter and grandchildren and the source of unconditional love. What a wonderful gift you are to them!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5445812383851572581.post-73694171725434483112014-07-29T18:55:15.496-04:002014-07-29T18:55:15.496-04:00Sometimes parents are unfortunate enough to have b...Sometimes parents are unfortunate enough to have been born into families that refuse to function as any kind of support system. Ever and in any capacity. I wish we had relatives interested in being a part of our lives, giving us a hand once in a while. Only in my dreams! We moved across Canada, from Quebec to Alberta, in order to find the only support system available to us - government funding. I don't know where I'd be without the funding for services and respite that Alberta gives us. We seem to be in a minority as most autism families have families who are willing to help, even provide babysitting! Let's not knock down parents who do move, so that they also can have a support system. Raising an autism child without family support is a nightmare. Thank goodness for governments who provide what some families don't.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5445812383851572581.post-28518825809912490062014-06-24T15:52:03.863-04:002014-06-24T15:52:03.863-04:00You hit the nail on the head! Without a strong su...You hit the nail on the head! Without a strong support system of family, raising kids with special needs is an exercise is emotional suicide sometimes. Sorry if that sounds harsh, but I know I, and most of my SN parent peers, rely heavily on our families for support, for respite, for our sanity. Nothing is worth giving that up, for me OR for my kids. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5445812383851572581.post-65092827617375903472014-05-22T06:33:30.423-04:002014-05-22T06:33:30.423-04:00Thank you for your frank and honest discussions.. ...Thank you for your frank and honest discussions.. I work in the Special Needs community and one of my biggest complaints is the "rosy picture" allot of parents and even therapists/teachers want to paint. I don't think its fair to the student or the families who are in the trenches, I know FULL well that I get to go home after my time with these awesome students but its the parents who are REALLY the un-sung hero's...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5445812383851572581.post-42925483716802893102014-05-21T19:47:48.392-04:002014-05-21T19:47:48.392-04:00This is the article that he was reading that menti...This is the article that he was reading that mentioned the $73,000 tuition http://nymag.com/news/features/23172/Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5445812383851572581.post-280063474396845542014-05-21T19:47:08.731-04:002014-05-21T19:47:08.731-04:00This is the article that he was reading that menti...This is the article that he was reading that mentioned the $73,000 tution!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5445812383851572581.post-27111936709965717952014-04-26T11:40:42.036-04:002014-04-26T11:40:42.036-04:00This is helpful info for us! Thank you for this a...This is helpful info for us! Thank you for this as we think about what's next for my 14 year old ...Unknownhttps://www.blogger.com/profile/00133558961385651196noreply@blogger.comtag:blogger.com,1999:blog-5445812383851572581.post-50469778509382147182014-03-26T17:48:25.855-04:002014-03-26T17:48:25.855-04:00You are spot on Autism Daddy. We don't have an...You are spot on Autism Daddy. We don't have an extended family but if I did I would stay in place. Building a network and using the resources you have are invaluable given that there is no other real assistance. We live in Florida and there simply is no real functional social services system. Even less for autism. We thought of moving to a state with some benefits and maybe a group home. I'm an RN and my wife a Respiratory Therapist. I did the numbers and we would have a net LOSS of income almost anywhere we moved. I decided to start a non-profit farmstead where our adult autistic girl (now 19) could live with 15 other autistic adults in safety. They will also have purposeful work and the farm will provide a sustainable income after the initial purchase of the ground, buildings and equipment. You aren't alone and there is a solution that isn't out of anyone's pocket: www.kb2farms.orgJohn Borrellihttps://www.blogger.com/profile/04561861309903190723noreply@blogger.comtag:blogger.com,1999:blog-5445812383851572581.post-70027300593417422352014-03-25T21:57:03.094-04:002014-03-25T21:57:03.094-04:00Well said my friend.. "if it works ..why try ...Well said my friend.. "if it works ..why try to change it".. AD I thank you for your rants! :) it helps me know that im not alone. We as parents are going through an emotional rollercoaster everyday it never ends..it will never end. So when we find the something that makes everyone happy why change it..I say if this is working for you and the wifey ..thats awesome. -veronicaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5445812383851572581.post-83249072459485199282014-03-16T23:24:57.230-04:002014-03-16T23:24:57.230-04:00Maybe some autistic are more trade suited, but som...Maybe some autistic are more trade suited, but some do go to college. Everyone's different, so I see your side but want to show the other side as well. Temple Grandin had college. I was diagnosed with Asperger's at 4 and many Aspies or high-functioning autistic do go to college. I got an AAS in computers. Not all typical people can do college. Some people are book smart and some are intelligent in other areas, like spatial or kinesthetic. aspiegurlhttp://aspieracefangurl.blogspot.com/noreply@blogger.comtag:blogger.com,1999:blog-5445812383851572581.post-81507057638389382802014-03-13T15:04:37.034-04:002014-03-13T15:04:37.034-04:00If you are looking for the best schools for your c...If you are looking for the best schools for your children, you have several resources to check out. Whether you plan to send your kids to a public, private, or charter school, you should take a look at the ratings and reviews given to local options. Find out where to learn the information you need in order to make a good decision.<br /><br /><a href="http://www.prepareforaustralia.com.au/studying/find-a-school.aspx" rel="nofollow">Find a School in Australia</a><br />Matthewhttps://www.blogger.com/profile/08161134347302121137noreply@blogger.comtag:blogger.com,1999:blog-5445812383851572581.post-19119505569486251732014-03-11T20:13:25.858-04:002014-03-11T20:13:25.858-04:00Only you know what is best for Kyle and your famil...Only you know what is best for Kyle and your family. To many armchair quarterbacks out there. <br /><br />Be strong and best wishes from this Autism Father to you.<br /><br />Anonymoushttps://www.blogger.com/profile/05990667585977581590noreply@blogger.comtag:blogger.com,1999:blog-5445812383851572581.post-85914946624366754582014-03-11T16:53:33.942-04:002014-03-11T16:53:33.942-04:00I can not begin to say I understand what your wife...I can not begin to say I understand what your wife and you are going through, but I get it. You are doing what is best for your child, no matter the situation, no matter the money, You are doing the best for him, making him happy, making him comfortable and it is not selfish for you to have a date night or go to the movies with your wife. Its a treat that you deserve and you work hard for it. I am sure that 23 out of the 24 hours on the day are spent thinking about how you can make Kyles life better and to ensure that he is happy. I commend you and am fortunate enough to have read a few of your posts that opens my eyes just a tad bit wider to the struggles that are out of our control each day. I wish you a happy day and a fabulous week. You make your childs life smile brighter each day cause he knows just how much you love him by your actions. No words required =) Anonymoushttps://www.blogger.com/profile/05358539522657802330noreply@blogger.comtag:blogger.com,1999:blog-5445812383851572581.post-90580494009523480892014-03-11T15:43:53.642-04:002014-03-11T15:43:53.642-04:001) If people want to get technical about Autism wh...1) If people want to get technical about Autism what is drilled into our heads about Autism ? Routine,routine, routine. 2) You have a support system that you guys are comfortable with and people you trust and he trusts. And that is hard to do regardless of anything. 3) You guys have set the foundation of love and he knows that. It's apparent <~~~~ funny that word has the word parent in it =)...in the pics,posts and anyone who understands. I have a great support system where I live and my daughter and am lucky enough to live where she can go to a special needs public school. Is it amazing ? Some days yes and some days no. Does everyone have an opinoin of what's best for my daughter ? Yup, but guess what I know what's best when it comes down to it no one and I mean no one not the professionals not the doctors only you can decide what's best for your child. Thank for showing the real of it. Take care and God Bless Anonymoushttps://www.blogger.com/profile/08299226210476968008noreply@blogger.comtag:blogger.com,1999:blog-5445812383851572581.post-8406561965756814482014-03-11T14:59:37.481-04:002014-03-11T14:59:37.481-04:00Thank you for writing this. I have 2 dd, 8 and 10...Thank you for writing this. I have 2 dd, 8 and 10. My 10yo is undiagnosed (not for lack of trying), most like Angelman's, sort-of. We were living in L.A. until 3 years ago. My special daughter was in a wonderful school, with great teachers and a GREAT after-schoool, summer, etc program for her. She was happy but we were not happy in our lives there. We have/had a wonderful life with friends in New Orleans, which is not known for its schools, typical or special. We looked at the big picture and realized this beautiful, happy girl, was happy because she was surrounded by love. Her happiness was a byproduct of everything in her life, not just her school. So we decided the happiness of the entire family and the well-being of everyone involved required us to relocate back to New Orleans. She is happy, we are happy. Her school will never been the subject of a top school article but she is safe, happy, and protected while the rest of the family gets to pursue our own happiness. Which, in the long run, is absolutely the best option for my daughter!The Thornsberry'shttps://www.blogger.com/profile/15893477212132362528noreply@blogger.comtag:blogger.com,1999:blog-5445812383851572581.post-2179451280324599662014-03-11T12:00:05.285-04:002014-03-11T12:00:05.285-04:00I'm from Miami with 2 ASD kids...see my post b...I'm from Miami with 2 ASD kids...see my post below...Anonymoushttps://www.blogger.com/profile/03972594066906688447noreply@blogger.comtag:blogger.com,1999:blog-5445812383851572581.post-46532234943737937202014-03-11T11:57:32.257-04:002014-03-11T11:57:32.257-04:00I completely get where you are coming from and we&...I completely get where you are coming from and we've been through the same sort of thing. Remember, I have two kids with autism. One is 13 and is verbal. Is he high functioning? I don't know. My 9 year old is the one we've had the most "Kyle-like" issues with. We've even gone down to Argentina to get a totally different perspective. They do things different there and I'm glad we have spent the months down there to learn what they do and we have incorporated their things in our home. We live in Miami. I'm not latina but I am a native "gringo". I can't stand this town...wish we could move, but it's home. I could take your blog posting and just change the names. We aren't going anywhere either. The public school system works for them. I've been all over and seen a whole bunch of "autism schools" and frankly...it's that "if it ain't broke don't fix it" thing. My 13 year old starts high school in August. He's going to be in what looks like a great program and he transitions pretty well. But still...who knows? Thanks for a great posting! Enjoy those dates. I know I couldn't survive without them. Anonymoushttps://www.blogger.com/profile/03972594066906688447noreply@blogger.comtag:blogger.com,1999:blog-5445812383851572581.post-24833543300463805282014-03-11T11:35:49.069-04:002014-03-11T11:35:49.069-04:00I understand what you are saying... But the system...I understand what you are saying... But the system doesn't work that way with the schools. Have you actually looked into it? There are a lot of common myths about this, even qmong ASD parents an# researchers. I say this as an advocate of a severly autistic and mentally retarded 18 year old. Also, you may be able to get home health specialists. There are a lot more things out there that are harder to find but exist. As far as the school goes, that is not how it works, usually it does not come to a lawsuit against the school, simply paperwork and a meeting. The schools know what will happen and if he is severe they wont deny that fact and no court or school board battle will happen. Be prepared for the day when your current ground hog day comes to an abrupt end and you will be forced to make a change. My little guy, around age 13 became suddenly very aggressive and violient. I hope this never happens to you, but Im sure you already realize everything can change in an instant. Which brings up, again i hope you never deal with this, the fact that you may have to place him sooner than you thought. You do not sound selfish to me, you are realistic. Parents with typical children say Id move heaven and earth... parents with. ASD children say I can hardly move lol. You and wifey know best of course. I hope I didnt sound rude and I'm sure you will handle every situation in the best way for your family :) Anonymousnoreply@blogger.com